We are people affected by dementia passionate about research, because research gives us hope. Hope for a future in which there is better care available for people with dementia. Hope for a future in which we are able to delay or prevent dementia. Hope that one day we will find a way to cure the causes of dementia through research.
We have all experienced how difficult it can be to find out about research and get involved in suitable studies. That is why we started this campaign, to encourage everyone working with people affected by dementia across the health and social care system to help people who want to get involved in studies, to do so.
And the truth is it is so easy to do! Join Dementia Research is a ‘sign posting’ or ‘match making’ service run the Alzheimer’s Society, Alzheimer’s Research UK, Alzheimer Scotland and the National Institute for Health Research (the research arm of the NHS). People interested in research give a few details about themselves so that they can match to studies they might be interested in and researchers can contact them. Clinicians don’t need to know what research is going on where – which would be a Herculean task with so many different studies going on across different parts of the UK. All they need to know is that Join Dementia Research is a one stop shop through which people interested in research can find what they need to know.
Encouraging people affected by dementia to register with Join Dementia Research is an easy way for clinicians to #handouthope to their patients.